{"id":7036177,"date":"2026-08-10T04:34:38","date_gmt":"2026-08-10T04:34:38","guid":{"rendered":"https:\/\/peraltafinancing.com\/activist\/in-memoriam-bob-kafka-pivotal-national-disability-rights-advocate-passes-away-at-79\/"},"modified":"2026-08-10T04:34:38","modified_gmt":"2026-08-10T04:34:38","slug":"in-memoriam-bob-kafka-pivotal-national-disability-rights-advocate-passes-away-at-79","status":"publish","type":"post","link":"https:\/\/fivemor.com\/?p=7036177","title":{"rendered":"In Memoriam: Bob Kafka: Pivotal National Disability Rights Advocate Passes Away at 79"},"content":{"rendered":"<p> <br \/>\n<\/p>\n<div>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" data-attachment-id=\"39465\" src=\"https:\/\/notdeadyet.org\/in-memoriam-bob-kafka-pivotal-national-disability-rights-advocate-passes-away-at-79\/bob-kafka-bw\/\" data-orig-file=\"https:\/\/i0.wp.com\/notdeadyet.org\/wp-content\/uploads\/2025\/12\/Bob-Kafka-bw.webp?fit=306%2C364&amp;ssl=1\" data-orig-size=\"306,364\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"Bob Kafka bw\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/i0.wp.com\/notdeadyet.org\/wp-content\/uploads\/2025\/12\/Bob-Kafka-bw.webp?fit=306%2C364&amp;ssl=1\" loading=\"lazy\" class=\"wp-image-39465 aligncenter\" alt=\"\" width=\"432\" height=\"514\" srcset=\"https:\/\/i0.wp.com\/notdeadyet.org\/wp-content\/uploads\/2025\/12\/Bob-Kafka-bw.webp?resize=252%2C300&amp;ssl=1 252w, https:\/\/i0.wp.com\/notdeadyet.org\/wp-content\/uploads\/2025\/12\/Bob-Kafka-bw.webp?w=306&amp;ssl=1 306w\" sizes=\"auto, (max-width: 432px) 100vw, 432px\"\/><\/p>\n<p>On behalf of the Board of Directors of Not Dead Yet, we express profound sadness at the <a href=\"https:\/\/www.tpr.org\/news\/2025-12-29\/dont-mourn-organize-how-disability-rights-advocate-bob-kafka-helped-shape-austin-and-the-nation\">news<\/a>\u00a0that legendary ADAPT organizer, first ally of Not Dead Yet, and pivotal disability rights advocate, Bob Kafka has passed away at his Austin, Texas home on December 26, 2025.<\/p>\n<p>First, our deepest heartfelt condolences to Stephanie Thomas, Bob\u2019s partner. During this difficult time, we will not forget their important work, instrumental in shaping attitudes and policy in Texas and across the nation, that true inclusion of people with disabilities benefits all of society.<\/p>\n<p>In the coming days, we will provide a longer entry, but for now, please find below from Bob Kafka\u2019s long running podcast, <a href=\"https:\/\/bob.barrierfreefutures.org\/\">Barrier Free Futures<\/a>, part of an<a href=\"https:\/\/notdeadyet.org\/barrier-free-futures-bob-kafka-interviews-diane-coleman-about-ndy-covid-19\/\"> interview between Not Dead Yet\u2019s late Foundress and President, Diane Coleman, and Bob Kafka. <\/a>It was Bob who came up with our organization\u2019s name, \u201cNot Dead Yet,\u201d as detailed below:<\/p>\n<p>\u00a0<\/p>\n<p style=\"text-align: center;\"><strong>Bob Kafka:<\/strong><\/p>\n<p style=\"text-align: center;\">\u2026But when did you start Not Dead Yet? And it really \u2013 that name is sort of grabbing. How did that begin and what is the mission of Not Dead Yet?<\/p>\n<p style=\"text-align: center;\"><strong>Diane Coleman:<\/strong><\/p>\n<p style=\"text-align: center;\">Well, I started it on April 27, 1996, so, that\u2019s almost 24 years ago now. And, it was actually, a number of people had been talking to me about starting a group like that. But it was actually, Bob, when I came up to you at a disability policy conference and you said, \u201cWell, I got an idea for a name for your group.\u201d You\u2019d been hearing about it and it was out of Monty Python and the Holy Grail, \u201cNot Dead Yet.\u201d That kind of made it happen. I actually made a little sign with the words \u201cNot Dead Yet\u201d and I went around and got people to sign on to some testimony. It was my first time testifying in Congress. There were all kinds of people there that signed on that are very well known. Disability advocates like Justin Dart, Judy Heumann, and so forth. <strong>But it was actually you giving me the name that got it going.<\/strong><\/p>\n<p style=\"text-align: center;\"><strong>Bob Kafka:<\/strong><\/p>\n<p style=\"text-align: center;\">It\u2019s funny because if people haven\u2019t seen The Life of Brian, it\u2019s actually in a very bizarre way, very relevant in that, in that movie it\u2019s during the plague and it\u2019s throwing bodies on this cart and there\u2019s a guy who is driving the cart and the bodies are supposed to be people who have died but they keep popping up and he hits them with a hammer, and they keep popping up and say, \u201cNot dead yet\u201d\u2026\u201d<\/p>\n<p style=\"text-align: center;\">*\u00a0 *\u00a0 *\u00a0 *\u00a0 *\u00a0 *<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>In September, Bob had asked me to appear on Barrier Free Futures, but owing to a scheduling conflict where I had been previously scheduled to return to Canada, I was unable to be interviewed by the great man. We had purposed to circle back and reschedule a time to talk when it was mutually convenient. I had hoped for early in the new year.<\/p>\n<p>Another reminder, that in everything we do and say \u2013 and think \u2013 in this common fight, that everything we can do <em>now<\/em>\u2026we should.<\/p>\n<p>From the Andrew Weber article linked above, for KUT Radio, NPR\u2019s Austin Station:<\/p>\n<p>\u201cFor Armbruster, he can\u2019t help but hear Kafka\u2019s other mantra, one that served as\u00a0<a class=\"Link\" href=\"https:\/\/www.aapd.com\/aapd-remembers-bob-kafka\/\" target=\"_blank\" rel=\"noopener\">his email signature<\/a>: \u201cDon\u2019t mourn, organize.\u201d<\/p>\n<p>\u201cIt\u2019s kind of ironic in this situation with him passing, but I\u2019m sure that\u2019s what he would want us to do,\u201d Armbruster said, \u201cto lead on and to move on and to continue the fight.\u201d<\/p>\n<p>\u00a0<\/p>\n<p>Onward,<\/p>\n<p>Ian McIntosh<\/p>\n<p>Executive Director<\/p>\n<p>Not Dead Yet.<\/p>\n<\/p><\/div>\n\n","protected":false},"excerpt":{"rendered":"<p>On behalf of the Board of Directors of Not Dead Yet, we express profound sadness at the news\u00a0that legendary ADAPT organizer, first ally of Not Dead Yet, and pivotal disability rights advocate, Bob Kafka has passed away at his Austin, Texas home on December 26, 2025. First, our deepest heartfelt condolences to Stephanie Thomas, Bob\u2019s [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":7036178,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[12022],"tags":[22988,7501,17156,116425,23219,5306,22185,25628,13922],"dealstore":[],"offerexpiration":[],"class_list":["post-7036177","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-activist","tag-advocate","tag-bob","tag-disability","tag-kafka","tag-memoriam","tag-national","tag-passes","tag-pivotal","tag-rights"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>In Memoriam: Bob Kafka: Pivotal National Disability Rights Advocate Passes Away at 79 - Som2ny Network<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/fivemor.com\/?p=7036177\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"In Memoriam: Bob Kafka: Pivotal National Disability Rights Advocate Passes Away at 79 - Som2ny Network\" \/>\n<meta property=\"og:description\" content=\"On behalf of the Board of Directors of Not Dead Yet, we express profound sadness at the news\u00a0that legendary ADAPT organizer, first ally of Not Dead Yet, and pivotal disability rights advocate, Bob Kafka has passed away at his Austin, Texas home on December 26, 2025. 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