I tend to do a double take every time I see a stroller. There are lots of baby joggers that have similarities to medical strollers and wheelchairs. Medical equipment is looking a little less medical lately, at least to me. So when something catches my eye, I am hopeful there is another parent out there just like me<\/em>.<\/p>\n Often though, it\u2019s just a regular ol\u2019 stroller.<\/p>\n We are in a transition phase with our son right now. He\u2019s three and a half and still small. His head especially is about the size of a nine month old. (That\u2019s according to my very scientifically accurate measurement of seeing him next to a little girl at a play gym last week that just so happened to be nine months old.) He weighs about 24 pounds, and has for over the last year. He still easily fits in a stroller, sleeps in a crib, and plays with infant toys. It feels like we\u2019ve been in the baby phase forever\u2013and I like the baby phase\u2013but I know some awkward changes are coming in the next year. \u00a0His favorite toys will likely not change, but he needs a new bed and a new ride (which means we need to use his wheelchair more than his stroller). Once we make the leap to new, more medical related options for him, it leads down a path once again very different from my peers. A path that I would not choose, but has been chosen for me.<\/strong><\/p>\n Most toddlers don\u2019t sleep in a tent-type bed because they can manage climbing safely in and out of bed. Most four-year-old kids can manage walking at the mall without an over sized stroller or wheelchair. And most kids Nathan\u2019s age can eat food by mouth and are potty trained. Mine needs special equipment and medical intervention to do very normal things.<\/p>\n I\u2019ve found little communities of parents who have children similar to mine. I\u2019ve had friends and family who have intentionally entered our world. In fact, I\u2019m overwhelmed by the ways our community has desired to get to know our son for who he is. As amazing as our support network is, it does not satisfy the desire, the obsession, I have for \u201cnormal.\u201d That\u2019s why I\u2019m always on the look-out for other special needs parents.<\/p>\n If I lived in a world where everyone had a special needs family member, it wouldn\u2019t be so hard to stand out. If everyone dealt with the daily challenges of caring for someone medically complicated, it wouldn\u2019t be so lonely. And if those things were so, then it would just be normal.<\/p>\n I fight this tension. I want it to go away. Yet it only dissipates\u00a0when I don\u2019t<\/em> press up against it and hate it so much. It drifts off when I decide to acknowledge it and name it. I am on a special needs path.\u00a0My external circumstances may not change, but my internal heart can shift. My path may not change direction, but the way in which I walk it can.<\/strong><\/p>\n Have you noticed there is a similar tension in the Psalms? This week I\u2019m finding peace and companionship in the words and songs of King David.<\/p>\n Keep me safe, my God,<\/span><\/em> I say to the Lord<\/span>, \u201cYou are my Lord;<\/span><\/em> Lord<\/span>, you alone are my portion and my cup;<\/span><\/em> Therefore my heart is glad and my tongue rejoices;<\/span><\/em> \u00a0\u2013 Psalm 16 <\/em>(NIV)<\/p>\n<\/div>\n![\"\"](\"https:\/\/i0.wp.com\/www.specialneedsparenting.net\/wp-content\/uploads\/2018\/01\/pexels-photo-7-824x549.jpg?resize=824%2C549\")
<\/p>\nThis journey is lonely.<\/h3>\n
It is not a normal path, and in that difference is where the tension lies for me.<\/h3>\n
\u00a0\u00a0\u00a0\u00a0<\/span>for in you I take refuge.<\/span><\/span><\/em><\/p>\n<\/div>\n
\u00a0\u00a0\u00a0\u00a0<\/span>apart from you I have no good thing.\u201d<\/span><\/span><\/em>
I say of the holy people who are in the land,<\/span><\/em>
\u00a0\u00a0\u00a0\u00a0<\/span>\u201cThey are the noble ones in whom is all my delight.\u201d<\/span><\/span><\/em>
Those who run after other gods will suffer more and more.<\/span><\/em>
\u00a0\u00a0\u00a0\u00a0<\/span>I will not pour out libations of blood to such gods<\/span><\/span><\/em>
\u00a0\u00a0\u00a0\u00a0<\/span>or take up their names on my lips.<\/span><\/span>\u00a0<\/em><\/p>\n<\/div>\n
\u00a0\u00a0\u00a0\u00a0<\/span>you make my lot secure.<\/span><\/span><\/em>
The boundary lines have fallen for me in pleasant places;<\/span><\/em>
\u00a0\u00a0\u00a0\u00a0<\/span>surely I have a delightful inheritance.<\/span><\/span><\/em>
I will praise the Lord<\/span>, who counsels me;<\/span><\/em>
\u00a0\u00a0\u00a0\u00a0<\/span>even at night my heart instructs me.<\/span><\/span><\/em>
I keep my eyes always on the Lord<\/span>.<\/span><\/em>
\u00a0\u00a0\u00a0\u00a0<\/span>With him at my right hand, I will not be shaken.<\/span><\/span><\/em><\/p>\n<\/div>\n
\u00a0\u00a0\u00a0\u00a0<\/span>my body also will rest secure,<\/span><\/span><\/em>
because you will not abandon me to the realm of the dead,<\/span><\/em>
\u00a0\u00a0\u00a0\u00a0<\/span>nor will you let your faithful\u00a0one see decay.<\/span><\/span><\/em>
You make known to me the path of life<\/strong>;<\/span><\/em>
\u00a0\u00a0\u00a0\u00a0<\/span>you will fill me with joy in your presence,<\/span><\/span><\/em>
\u00a0\u00a0\u00a0\u00a0<\/span>with eternal pleasures at your right hand.<\/span><\/span><\/em><\/p>\n<\/div>\n![\"\"](\"https:\/\/secure.gravatar.com\/avatar\/d7778a1643e4a07a09fed2018c4d1d3b9a03fc9332ddc9cd2d39a2493354f6b6?s=80&d=https%3A%2F%2Fspecialneedsparenting.net%2Fwp-content%2Fthemes%2Fnot-alone%2Fimages%2Fcircle.jpg&r=g\")
\n\t\t<\/div>\n<\/p><\/div>\n\n\t\t<\/div>\n